More About Alexandra Boothby
I am a 25 year old who was showing signs at 21, officially diagnosed at 23 with a genetic neurological degenerative disease called Huntington's Disease. The average onset of is 35-55 years old but since I was showing signs at 21, I have Juvenile Huntington's Disease. When I was first diagnosed I felt like the elephant in the room, and I felt self conscious about my movements and off balance but with the inspiration from my sister, I decided to share my HD journey with the world and I started a blog. Once I came out and said this is me and here is what I have,the responses that I received were utterly amazing and I realized that people were inspired by my imperfections so I quickly began to embrace them! In the summer of 2015, I wrote a memoir about the ups and downs of my journey which I titled, ," Living With Passion" after my blog name.
As of now there is no cure or treatment but I keep my hope and faith alive that there will be one soon. I have always believed that everything happens for a reason and I believe my reason for suffering from a hard disease was for me to learn how to truly live with passion, about being my one true self, living in the moment, embracing my differences and imperfections, staying in the light even when it's easier to stay in the dark, living positive and to truly love myself and my life, and how to be brave, fearless, and to radiate happiness and to inspire and teach others how to in their lives.